PWSA USA
Note: National organization for Prader-Willi Syndrome. There is a wealth of information available on this website including on-line support groups, crisis hotline, Package of Hope for new diagnosis.
First Steps
1-800-441-STEP
Developmental services for ages 0 to 3 years
PWS Lovebugs
A private Facebook group for parents of children ages 0-2 with Prader-Willi Syndrome looking to make connections with the PWS community. Contact us for more information.
Bureau of Developmental Disabilities Services
7155 Shadeland Station #160
Indianapolis, IN 46256
(317)-232-7842
Contact this office to apply for Medicaid Waiver. It is important to do this as soon as possible.
Indiana University Medical and Molecular Genetics
Biochemical Genetics Clinic
Riley Outpatient Center, MSA 3
Indianapolis, IN 46202
Office: 317-274-3966
Fax: 317-278-0936
After Hours: 274-5000 (ask for Metabolism Dr. on call)
The ARC of Indiana
107 N. Pennsylvania Street, Suite 300
Indianapolis, IN 46204
Advocation for people with developmental disabilities and their families since 1956
MetLife (Met DESK)
Division of Estate planning for Special Kids
Gordon F. Homes, Jr., CFP, ChFC, CLU
Senior Financial Planner
8520 Allison Pointe Boulevard, Suite 300, Indianapolis, IN 46250
(317)-567-2005 or 1-800-903-6380 ext 2005
Email: ghomes@metlife.com
Contact for estate planning, trusts, etc. for families with children with special needs
911 Gives Hope
911 Gives Hope is a group of Police Officers, Firefighters and Paramedics from Gibson, Posey, Vanderburgh, Warrick County, Indiana, and Henderson County, Kentucky dedicated to improving the lives of children and people with disabilities in the local community. Visit their website for events held to raise awareness and money for Prader-Willi Syndrome and other disabilities.
