Local Resources

PWSA USA

www.pwsausa.org

Note:  National organization for Prader-Willi Syndrome.  There is a wealth of information available on this website including on-line support groups, crisis hotline, Package of Hope for new diagnosis.

First Steps

1-800-441-STEP

Developmental services for ages 0 to 3 years

PWS Lovebugs

A private Facebook group for parents of children ages 0-2 with Prader-Willi Syndrome looking to make connections with the PWS community.  Contact us for more information.

Bureau of Developmental Disabilities Services

7155 Shadeland Station #160

Indianapolis, IN 46256

(317)-232-7842

Contact this office to apply for Medicaid Waiver.  It is important to do this as soon as possible.

Indiana University Medical and Molecular Genetics

Biochemical Genetics Clinic

Riley Outpatient Center, MSA 3

Indianapolis, IN 46202

Office:  317-274-3966

Fax:  317-278-0936

After Hours:  274-5000 (ask for Metabolism Dr. on call)

The ARC of Indiana

107 N. Pennsylvania Street, Suite 300

Indianapolis, IN 46204

www.arcind.org

Advocation for people with developmental disabilities and their families since 1956

MetLife (Met DESK)

Division of Estate planning for Special Kids

Gordon F. Homes, Jr., CFP, ChFC, CLU

Senior Financial Planner

8520 Allison Pointe Boulevard, Suite 300, Indianapolis, IN 46250

(317)-567-2005 or 1-800-903-6380 ext 2005

Email: ghomes@metlife.com

Contact for estate planning, trusts, etc. for families with children with special needs

911 Gives Hope

911 Gives Hope is a group of Police Officers, Firefighters and Paramedics from Gibson, Posey, Vanderburgh, Warrick County, Indiana, and Henderson County, Kentucky dedicated to improving the lives of children and people with disabilities in the local community. Visit their website for events held to raise awareness and money for Prader-Willi Syndrome and other disabilities.

www.911giveshope.com